We left the hospital with Ruadhri being tube fed, which we were had learnt how to do and we had been given out bag full of spares, what anyone failed to tell us that over the next week or two how much stuff would be delivered and how we would have to find somewhere to put it all. Had it been a few bags full that wouldn't have been too bad, but we had boxes and boxes of stuff, everything from bottles, to feeding connectors, milk, when the front door bell would go I hoped that it wasn't more boxes.
Where on earth were we going to put all this stuff, mores to the point what does half of it do. Then the call came to say that after almost two months of bolus feeding that someone had felt sorry for us and we would be getting a feeding pump, it would arrive within a few days, this I was hoping would be the last box we would get. Thankfully it came by a dietitian so we didn't have to worry about getting rid of more boxes, I think even the recycle bin was screaming for a break. Why had no one told us about all the equipment we would be getting or need for day to day living.(looking back we were one of the lucky ones he could have had far more equipment). So for the time being our bathroom draws started to over flow with everything that we would need to keep our boy going. We also had a
We also had a lot of dressing and tapes, milk thinner, stomach medicines, anti sickness meds(which made him more sick) the list was never ending. Then came the letter with all our account details for the company who supplied all this equipment so that we would be able to order what we needed monthly. Again something that we had not be warned about. It was starting to look like a hospital with everything that we had around us. But if it meant that Ruaidhri would be right then that was all that mattered.
So now that we would be getting these delivery's on a monthly bases we would have to find somewhere to put it all. It became like the krypton factor every month to see where I could squash more boxes under the stairs, then we got plastic boxes with lids to keep it all in. In the end short of building and extra room we made room under the stairs, and the over flow storage would be the kitchen cupboards, should have put open with caution stickers on them, some days you really did take life into your own hands opening them, thank god for child safety clips on the cupboards doors as I think that helped keep it all in.
We also had to start buying more and more puke blankets as he was using them quicker than I could wash them, in the end I gave up and homed them with the tea towels, it was the only cupboard in the kitchen that had no child clips and was easy reach for Poppy as she became the towel grabber. We were also buying more washing powder to cope with the amount of washing I would end up doing, some days could be up to four washing machine loads, we were also running out of places to dry it all. Maybe it wasn't a extra room we needed but a bigger house altogether.
As an extension wasn't on the cards any time soon and moving house was out of the question, we would have to find other ways to fit it all in. Ruaidhri started to wear just vests and sleep suits when we were staying in as I could get more of them at one go in the washing machine and they also didn't take too long to dry. The plan started to work and the rest would follow.
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