Let's bring more people to the party

If you thought that we already had enough people to deal with from the health profession the list was about to get a  whole lot longer, and I would loose count of how many times I would relay information and details of Ruaidhri condition and what treatment he had, had so far.

So the list started out as the following:

The cardiologist, who agreed with very few people but knew almost everything

The heart surgeon who was always right and agreed with even less people but knew everything and some

The community nurse who would always go back and ask for advice because they weren't cardiac trained and didn't know as much

The ward 5A because if all else failed I would pick up my bat phone and call for help if they didn't know they would find out

The dietitian who had her own plan and as nice as she was, was running out of ideas and things she knew.

That was the list of people we would communicate with on a regular basis for the first four months, but Ruaidhri has decided that we did not know enough of the staff from the NHS and wanted to challenge some more people so lets welcome:

The Gastroenterologist (gastro for short) who was a lovely man, could never agree with the cardiologist and some times agreed with the dietitian but knew lots about what he needed to know

The Speech and language therapist who depending on which district they were from would agree with everyone or no one and frankly we are still trying to work out what they knew

The cardiac liaison nurses who were nice, but when you phoned you were always faced with the answer machine so that would lead you back to the ward

The Secretaries of all the above because they would know when you would see most of the above next but knew nothing of any medical help it was just another number to add to the list.

Lets not forget the children's ward at the local hospital who frankly were only good for putting the feeding tube back in as if it was anything they would ring the ward at yorkhill 

The receptionist at the health centre who thought they had a medical degree but knew nothing it was a flight to even get the right medication

The manager of the health centre, as after more than a few mistakes we complained and hoped that would be the end of it, but nope she became a firm favourite every few months

Evening writing this now am worn out. Each and every one of these people would do their job to the best of their ability and knowledge.  Although some times no, most if not all of the time I would repeat myself and find myself wanting to back my head off a brick wall.  Out of the list above I think the only people that would ever be in the same room at the same time who would agree at the time would be the gastro and dietitian which made for a nice meeting and always cracking conversation about the above.

These people although had to do a job I became to know very well it was like a friendship was growing, these people became apart of our day to day life, to the point that when I rang the dietitian she would know it was me as soon as I said hello.  They all knew everything there was to know about our boy from his heart right down to his bowels and even the bits in between.

 I know what your thinking if they all knew him so well and all had done their job and way more why did we have the outcome we had, and why am I praising them all in their own fields,(except the health centre) it's because they are all only human and sometimes there are things in life that are bigger than anyone and no one had a plan for those things, sometimes even the best miss things.  They aren't robots, but we were very lucky to deal with and have so many people look after the care of him, he baffled the best.

We got to know each and everyone of them at some level and that in itself has given us more than a few laughs..Its good to know the people behind the care.  Just know that they aren't fighting against you although there are times that it feels like that they are fighting with you, and remember they are human too.